With the New Year here and 1 year of treatment completed, I thought it would be a great time to offer some hope to those of you early in this journey.
I hesitate to say hope though because unfortunately there are some patients who face a more difficult and lengthy path to healing and it's pretty much impossible to know early on if your child will have a shorter, more direct path to healing perhaps hiking up and down some challenging hills or a meandering and long one that involves climbing huge mountain peaks along the way. (Remember to look into mold, heavy metals, FL-1953 (Protomyxzoa Rheumatica) and MTHFR genetic mutations if you hit a huge road block.) Then there is always the looming possibility that the journey begins anew after recovery with a relapse or another infected tick bite.
So it's officially been one year that our son has been in long term treatment with a Lyme literate medical practice for Lyme disease, mycoplasma, bartonella and babesia. From what I've learned this year, there could be even more tick diseases he has but hopefully they are being destroyed by some of his various treatments for the 4 we know about.
Has he made progress? I can say so with a resounding YES! Have there been challenges and ongoing issues? Yes to that too. The first 6 months were so difficult with multiple symptoms and many, many days of complete and utter exhaustion and brain fog. But slowly and gradually, by unpeeling the many layers and chipping away at the hardened and entrenched infections along with diligent detoxing and probiotics, healing is occurring. New issues still arise, often centered around whatever infections are being treated at a particular time. However, they seem to be less stark than earlier this year. Gradual lessening of symptoms abounds even while some new ones have arisen.
If you were to ask him, he now says he feels he is back at 80-85% most days but still at 20% on his chronic fatigue days. When not in school and allowed to rest as much as he wants - think summer and holidays, those tired days disappear but with school and his will to push himself on well days, he is still missing about 20% of his freshman year. This is a big improvement over last year though so we'll take it. Plus he recently began twice weekly B12 injections which bring him to 100% for 2 days following the injection. We will be timing them to try to hopefully help him get to school more regularly. He is thrilled to feel "normal" again for part of the week.
You may be thinking, how did this happen for him- is there some magic trick to it? I can only say I believe it's a combination of a LLMD practice that is renowned for success, our son's genetic makeup, his decision to not let these infections rule his life yet still be able to go with the ebb and flow of how he's feeling, his willingness to swallow handfuls of pills and drink yucky tasting tinctures with daily probiotics, using a trial and error method to incorporating supplements and herbs, and some plain ole good luck and lots of faith and prayer along the way.
I really hope that your family will experience healing in 2017!
Working wife and mom to two, including a teen son who was diagnosed with Lyme and other co-infections from an unseen tick bite with no bulls-eye.
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