It's been awhile since I've posted for various reasons but as I've watched our son feeling so well this summer and last, I got to thinking and then reading online about the seasonal and cyclical changes those with Lyme and tick co-infections often notice throughout the year as well as based on the moon's cycles.
While anyone who has investigated Lyme online realizes that for every person with tick diseases, there is a unique story individual to that person which can vary greatly from that of the next Lyme patient. However, there are often trends both in individual patients with their own symptoms cycling, and among groups of patients.
In particular, there are many stories online by parents of teens who find their child feels better, often significantly improved, during the summer months. For a few short months, some, but sadly not all, of our seriously ill children are mostly living normal lives! This is a joy but we also know that it is probably short-lived. It takes a lot of mental strength to bury our concern for what symptoms will rear themselves this fall, winter and spring.
For our son, the past 2 summers have meant none of the crushing chronic fatigue and fewer daily fever cycles. His breathing is still a significant issue but he can still get up and outside which is absolutely impossible if he's completely unable to move beyond a short trip to the bathroom across the hall from his bed.
Starting no later than October, old symptoms return with a vengeance and this continues until the following May or June. For our son, this also includes a return to the effects of a full moon or a longer period of chronic fatigue for a week or so every 20 - 22 days.
This winter will be interesting because he will have been in treatment for almost a year and we hope to see a lessening of his winter symptoms which have been quite bad the past two winters. He was expected to be quite sick this summer with his current treatment regimen but aside from 2 days of fatigue and a short-lived knee flare of 3-4 days, he has been doing well with his Lyme symptoms with little or gradual change, however, in his co-infections symptoms.
There is speculation that access to:
Working wife and mom to two, including a teen son who was diagnosed with Lyme and other co-infections from an unseen tick bite with no bulls-eye.
Touched by Lyme-Leland
Lyme Disease Challenge Blog
Tired of Lyme
Lyme MD-Dr. Jaller
All Things Lyme-Cameron Blog
Better Health Guy
Abounding in Hope blog-Christian family of 6 w/Lyme
Lyme-Debug Your Health