Our son's first follow up appointment with his LLMD nurse practitioner went well. The focus was on how to relieve his 3 biggest symptom complaints, look at his lab report and set the treatment course for the next few months. LLMDs often switch up the treatment plans and increase dosages and / or try new antibiotic or herbal strategies to confuse these stubborn infections, bring added relief and continue killing off the pathogens.
The past few weeks he has been gasping for air, just gulping it in, much of the day and night. His breathing had steadily worsened and become his number one issue. He said it feels like someone is sitting on his chest while he breathes through a straw. After a basketball game, we witnessed an hour long episode which had me quickly googling to see if a trip to the ER was in order (it apparently wasn't as his blood oxygen would show as normal) and what other patients recommend to alleviate the symptoms.
As with all things Lyme related, each person has to find what works for them. We all develop our bag of tricks and a mental list of what to try for each symptom. We tried Benadryl, Burbur herbal tincture, breathing into a paper bag, lemon water and probably a few other things I've now forgotten. Luckily the paper bag helped and he started to carry one around in his backpack to school.
So after discussing his breathing, his specialist, in consult with the clinic head, decided to have him try an albuterol inhaler which is working to his great relief. He said he feels that his glass is 80% full rather than 50%. Evidently it is an autonomic side effect of his co-infection(s) and the albuterol sends a message to his system to calm down. Maybe now he'll get better sleep and be able to wake up in the morning. Restless sleep because of the fevers cycling overnight and the breathing problems mean he's missed first period almost every day. We brought in a space heater and now he has the inhaler so maybe we'll see an improvement. We are just glad he's able to attend most of school!
Speaking of co-infections, his labs came back with a high mycoplasma count so there is yet another co-infection to treat. He is starting a heavier treatment for babesia, continuing on some of the same antibiotics and starting to take one daily for the mycoplasma rather than pulsing it. The next few months should be interesting and telling - improvement or herxing or both? He tends to feel worst on his week off of antibiotics although now he won't be completely off them, just mostly on his off weeks.
Working wife and mom to two, including a teen son who was diagnosed with Lyme and other co-infections from an unseen tick bite with no bulls-eye.
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