First off, I would love to get some feedback on this topic which I'm revisiting earlier than I had expected - have you noticed that your kid(s) with Lyme perk up in the summer, only to slide back into symptoms in the fall-winter-spring? This is the second year we've seen this happen rather dramatically.
As mentioned in my last blog post, our son had an amazing almost symptom-free summer, starting as usual in mid-June, except for one terrible heat-induced breathing and hyperventilation episode and hot flashes and daily fever (down from numerous daily fevers). The best part was he had not one day or night of the chronic exhaustion! He was able to enjoy time with friends, even group sleep-overs - things that happened minimally, if at all, last school year. And he started high school cross country, despite his breathing issues which is pretty awesome.
But then school started and by the second day he spiked an afternoon fever in class and came straight home and didn't move the rest of the night. I admit it was a big blow for me. While I knew based on his history the past few years that relapses had happened in October - around his bite time, I was hopeful we would be past it this year.
The good news is that, after 10 months of treatment, he rebounded more quickly than last year. This week the day after re-starting treatment, he had a sofa day and missed school and a test. Again, he recovered and attended school the next day. Hopefully this trend of 1 day of fatigue and then well again will continue so less school will be missed. Progress, however slow it can seem, is being made with his treatment and that is so gratifying.
Thank God for LLMDs and LLNPs - forever our publicly unsung heroes with their knowledge, tenacity, open mindedness, compassion and willingness to fight for their patients' rights to heal!
Working wife and mom to two, including a teen son who was diagnosed with Lyme and other co-infections from an unseen tick bite with no bulls-eye.
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