Lyme Disease 101 for Parents
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lyme & tick co-infection
parenting journeys

Hopefully I will be blogging here as time permits.

Summer is over and sickness is back...

9/22/2016

2 Comments

 
First off, I would love to get some feedback on this topic which I'm revisiting earlier than I had expected - have you noticed that your kid(s) with Lyme perk up in the summer, only to slide back into symptoms in the fall-winter-spring?  This is the second year we've seen this happen rather dramatically.

As mentioned in my last blog post, our son had an amazing almost symptom-free summer, starting as usual in mid-June, except for one terrible heat-induced  breathing and hyperventilation episode and hot flashes and daily fever (down from numerous daily fevers).  The best part was he had not one day or night of the chronic exhaustion!  He was able to enjoy time with friends, even group sleep-overs - things that happened minimally, if at all, last school year.  And he started high school cross country, despite his breathing issues which is pretty awesome.

But then school started and by the second day he spiked an afternoon fever in class and came straight home and didn't move the rest of the night.  I admit it was a big blow for me. While I knew based on his history the past few years that relapses had happened in October - around his bite time, I was hopeful we would be past it this year.

The good news is that, after 10 months of treatment, he rebounded more quickly than last year.  This week the day after re-starting treatment, he had a sofa day and missed school and a test.  Again, he recovered and attended school the next day.  Hopefully this trend of 1 day of fatigue and then well again will continue so less school will be missed. Progress, however slow it can seem, is being made with his treatment and that is so gratifying. 

Thank God for LLMDs and LLNPs - forever our publicly unsung heroes with their knowledge, tenacity, open mindedness, compassion and willingness to fight for their patients' rights to heal!

2 Comments
Jessica Schondel
10/10/2016 03:45:08 pm

The answer is related to stress and a child with a compromised immune system being exposed to all kinds of germs. And the pressure that these kids are under without even being sick is enormous. Add that amount of pressure to a child with Lyme/TBDs and it tips them over! It is completely overwhelming bc they start to miss more and more school, work piles up, more stress. Some teachers understand but the majority of the school "system" do not. We have had a school nurse say "oh these kids will say anything to get out of class".

My son started this journey I'm 4th grade and now he is in 9th. He has been mostly out of the school setting than in for his education but wants desperately to be at school with peers.

He had a good summer but since school has started he has had to miss one day a week. He is way too exhausted physically and mentally after a full day of school that he doesn't do his homework.

I don't even care about HW. I don't even understand the purpose of him being in a class for 90 min and then be given hw and projects.

Typically, adults don't have to take so much home after work. So yeah, our kids will slide downhill.

We just treat symptoms only, like acupuncture, no antibiotics bc we did on and off for a couple of years but we weren't seeing a huge change after a while. Gonna explore other supplemental avenues to help improve his health. We will cross bridges as needed with regard to school.

Reply
N
10/16/2016 11:14:35 am

Hi Jessica,
Thanks for your comment! It sounds like your son and ours both are missing 20% of their freshman year and with the homework, it's so difficult to catch up. I agree that being in close quarters once school re-starts is a further assault on their weakened immune systems and part of the relapse. I wish you the best as you work to find treatments that minimize symptoms.

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    Working wife and mom to two, including a teen son who was diagnosed with Lyme and other co-infections from an unseen tick bite with no bulls-eye.

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All information presented here is for informational purposes only and is not intended to substitute for medical care. Readers are cautioned not to rely on this information as medical advice and to consult a qualified medical professional.  This information has not been evaluated by any government agency and this information is not intended to diagnose, treat, cure or prevent any disease.
  • Home
  • Lyme & Co-infections
    • Lyme Caught Early May = Quick Healing
    • Lyme & Tick Disease Symptoms and Stages
    • Other diseases Lyme mimics
    • Tick Bite Prevention Tips
  • Treatment Paths
    • 1st: Start a Lyme Journal
    • Multiple Paths to Wellness
    • Finding Lyme Literate Drs
    • Nutritional Support for Lyme
    • Lyme Herxing and Detoxing
  • Videos & Reads
    • Lyme Documentaries & Personal Videos
    • Lyme Research & Family articles
    • Recommended Lyme Books
  • People to Know
  • Support & Advocacy
  • Parents of Lyme Kids Blog
  • Our Lyme Story
  • Contact